It's a Crazy Life...But it's Our Life...

Thursday, January 7, 2016

Today after school I realized that Quynsie was wearing Raven's pants (2 sizes to small) and her reason:
Because she wanted to look good to ask a boy out.
No! She did not ask him out or at least that is what she says.
Ugh...Raven and Nadia could pass off wearing each others clothes because they are closer in size, but there is a big difference between Quynsie and the other 2 girls. I just wish she would realize that. The dumb thing is that she complains when her own pants don't fit, yet, she is ok wearing her sisters pants. I don't GET IT!!!
 
Here is the latest project that we have been working on during Christmas break.
It sure will be nice having a game room/tv room for downstairs.
I am hopeful that we will be seeing our kids and their friends hanging out here often.
 
 
Yesterday January 06, 2016
 
Ugh $41.50 in band fees that Quynsie has racked up.
$20 to fix her flute (I have known about this one for awhile)
$14 in music sheet damage (found out about this one this morning)
$7.50 in a workbook (that I had no idea about until I went to pay for the first two fees).
 
 
Something that people need to understand about sensory seeking kiddo's....
 
These behaviors do not all start at the same time. They can and will develop new/different habits/behaviors at any given time. My kid is not a horrible kid who wants to be bad all of the time. In fact, he tries really hard to be good most of the time, but just can't control his behavior due to needing that extra output/input into and out of his body. He is also an oral seeking kiddo and that has made t...hings more difficult in the past few weeks (new behavior) with holes in clothes, hands in mouth, well basically anything he can put in his mouth really. The one that I cannot handle the most is him licking the carts at the grocery store...SICK!!! I know, but please when you are out in public and make comments like "you really shouldn't let your kid put his mouth on the cart", think twice that maybe there is a reason the kid is doing it (besides the fact that I think every kid does it, but eventualy grow out of it). If you are not going to help with suggestions that actually work, please just keep your mouth shut.
Yes, this actually happened the other day at the store. Someone tried to tell me that it was sick, I was like, yes i know that it is sick, but sometimes there is not a darn thing I can do to distract the boy from doing it.
That is why they offer wipes at the door people...use them
RANT OVER!!!!
 
Oh my gosh!!!! This is my life everyday all the live long day!

Tuesday, January 5, 2016

Well, school is back into full swing.
Drama...drama...drama...drama
 
School started back up yesterday and we have already had things happen.
Quynsie's locker partner all but kicked her out of her locker.
A kid started a rumor about Raven that could have been very damaging to her and her education. Raven did not say whatever it was and the principal has been notified and talked to all parties involved. She does not make friends easily and she is not the most popular kid on campus. In fact, she is pretty much the one that has very few friends. It breaks my heart to be honest.
 
The braces saga has now begun at our house. Raven is getting her top braces 2 weeks from today. She has an impacted tooth that will require an oral surgeon at some point. Once that is dealt with, then the bottom braces will go on. We are looking at about 2 1/2 years at the least in braces.
 
Once Nadia loses all of her baby teeth then it will be her turn.
 
We are aways off from ever knowing if Carson will need them.
 
Quynsie's teeth are not bad enough to warrant $3,000+ and it is mostly her bottom teeth that bug her.
 
Tonight I was
Sitting outside Carson's bedroom because he won't stay in there...

 He says: Oh so you think your so funny now. ... Oh no you didn't
Then he says I need a drink
I said: No your fine go to bed
He says: if you want me to stay in bed then that's what your going to do is let me get a drink...
Then he continues on and says: you entertain me sometimes to be the boss.
Bedtime around here is a big joke. It is extremely tiring.
 
Ugh this boy...what are we going to do with him?
He comes up with the craziest things.
He does not like change in routine either. He shows us that by messing his pants.
During the Christmas break, he only messed his pants the first couple of days, and then was fine...until today. School started yesterday and that resulted in a change. Change stresses him and Nadia out so bad.
Nadia shows her stress by her huge tantrums that she has...looooooong drawn out tantrums. They were starting to fade before we moved and now they are back, but are starting to fade back out as long as we catch her behavior before it gets past the snapping point. If we see the stressed look on her face, we are able to tell her to take a breath and calm down. She has also gotten better at telling us, hey, this is stressing me out or bugging me so that we can deal with it before the tantrum.
 
UGH........THESE KIDS ARE GROWING UP WAY TO FAST...
Quynsie is going to be 14 in March
Raven will be 11 in May
Nadia is a year from being 10 (we have almost had her for half her life)
And Carson just turned 7 and will be turning 8 this year, which means getting baptized.


Saturday, January 2, 2016

January 1, 2016
 
Really proud of Nadia. Her and raven are at a neighbors house playing and we didn't remind them to check in before they left but Nadia just called and checked in. Proud mommy moment.
December 31, 2015
Carson is going to his first play date today. I have been putting this off because of his sensory issues. If he gets over stimulated things go down hill really fast. Thankfully Quynsie will be there babysitting.
 
It sounds like Carson had a good time today. I will admit that it was nice not hearing his sensory high pitch squealing all day. He didn't even want to come say hi to me when he got home. Joe told him that he must always come find mom and tell her Hi when he comes home from a friend's house so he finally hollered from the stairs "Hi mom! " little sinker.
Thanks Stephanie Mason for letting him tag along with Quynsie. I'm sure this was just the gist of many play dates with Cody and Carson.
You Know You're A Sensory Parent When......
 
 
1. Your child licks EVERYTHING.

 2. You make five different things hoping your child eats something.

 3. You have 10 pairs of socks to throw at your child each morning... hoping that one pair will "feel right."

 4. Your child tells you to be quiet or turn off the radio or TV, but he speaks so loud you consider buying headphones for yourself.

 5. You have an indoor swing and trampoline.

 6. You suddenly develop sensory issues yourself... from spending a lot of time with your kid.

 7. You cut EVERY tag out of EVERY product your children have, immediately!
8. You have to bring food with you everywhere you go because you know he won't/can't eat other foods.

 9. You walk into a public restroom and pray to God nobody flushes in the stall next to you.

 10. You read all of these and think, "Yup - that's us, too.  Glad we're not the only ones!"

 11. Your child's Christmas presents were all recommended by your OT and you knew he would be ecstatic to get them.

 12. It takes two parents to hold your child down to cut their nearly ingrown toenails.

 13. You cut your child's finger nails and toe nails while they are sleeping. 

 14. You hope there are NO hand dryers in a public bathroom after washing hands.  Complete TRAUMA!

 15. You no longer notice you're a living jungle gym being climbed on.

 16. You actually question if pants are really that necessary for school. (Only for a moment of course)

 17. You send your child to school wearing a Halloween costume because that is all that they will wear. 

 18. Your child's behaviour in the local pharmacy makes you want to smack (not your child) self-righteous old ladies standing in the queue ahead of you!

 19. When you become a hermit because leaving the house results in major meltdowns! 

 20. You carry post-it notes in your purse to cover the "auto-sensor" flushing toilets.

 21. When your kids cover their ears at everything loud but wanna ride the vacuum and scream over each other or talk loudly.

 22. You child cover ears while "Happy Birthday" is sung.

 23. You have to consider how soft stuffed animals/blankies/clothes are so that they are "softing" worthy.

 24. You have to seriously do research on what toys are most durable because, if not, they will not last 72 hours without getting broken. 

 25. You avoid things that would be typically fun, such as birthday parties or events.
26. Your child lies upside down on the bleachers to watch a game.

 27. Your child wants you to talk quietly, but he's always yelling.

 28. You hope your 3 year old has started talking, has given up her sippy cup& is potty trained by the time she starts kindergarten.

 29. You have to check every item of clothing for tags, loose threads and uneven seams.  You need to make sure they're not too tight or too loose and have comfortable fabric, etc.

 30. Your child strips down to undies or gets naked as soon as they walk through the door.

 31. Your most frequently spoken sentence is "Get that out of your mouth."
32. You take family photos and later you notice your child is licking his sibling's high chair in one.   Then you decide you like that one best – because it looks more real!
 
33. You get excited that you got your son to actually eat something good.

 34. You stop going out to eat at restaurants.

 35. You nod in agreement or can smile because as you are reading all these you know you aren't alone.

 36. Your kiddo pushes into you hard, but sometimes if someone barely touches her she screams bloody murder.

 37. You try explaining sensory issues only to get that blank stare.

 38. You know in your heart the things you are doing may seem strange, but they work.

 39. The judgment does not matter because you're just doing what is best for your child.

 40. You realize eating out with the family means getting takeout.

 41. Your bag/purse has more of their stuff in it than your own.

 42. You find yourself crying in the bathroom so he doesn't see your hurt for him.

 43. You know most of your furniture will not make it out of the house alive.

 44. A haircut is a loud and long process that sometimes takes several people to complete.

 45. You have to excuse yourself/your child for a sensory meltdown.

 46. Parents around you gasp in quiet shock when they see what your child has done, such as finger painting the bathroom mirror with toothpaste.

 47. You always have a chewy in your purse... and a back up.

 48. Your child touches absolutely EVERYTHING he walks by.

 49. You carry multiple shirts because you know the sleeves and neck will be soaked in no time.

 50. You get relief out of fidget toys, too.
 
51. Every morning you wake up to the thought of "Oh no... I have to get them to put on clothes again."

 52. You are the entertainment during a church service.

 53. Your child sits upside down to watch TV.

 54. In any noisy place, you have to go outside to calm them down and you may end up doing that a few hundred times before you decide to just leave.

 55. You feel like you want to crawl in a hole because your child needs more sensory input than your own nervous system can handle!

 56. You tell your child to stop licking you constantly.

57. Everything you do every day is 10x harder than with non-SPD kids.

 58. Your child refuses to shower or bath without having to have shaving cream to put on the walls for them to play with. 

 59. You have a talk every morning about what the steps are for the day.

 60. You cannot change routine or your child will have a terrible day or week.

61. You have to watch them every 5 minutes to make sure they are not up to any mischief.

 62. You have to give your child a minimum of three choices for shirts to choose from.

 63. Your child needs to be squeezed as much as you need them to squeeze you back.

 64. You calmly walk through the grocery store while they scream at the top of their lungs, ignoring the stares.

 65. You have to warn them when you are turning the blender on. 

 66. Your child refuses to wear socks. 

 67. It feels like you are against the world.

 68. You let your child wear a dirty outfit because they won't wear anything else.
69. You have to do laundry daily for the only pair of pants or shorts your child will wear. 

 70. You buy every color and size of clothing your child agrees to wear. 

 71. Your kid has 6 pairs of the same pants because they "work" most mornings without meltdowns about the seams.

 72. You are taking your child to the car and people actually think you are abducting them due to the colossal meltdown going on.

 73. You get excited because you walk into the store and find the exact same sweats that your child wore every day last year.

 74. Every outing makes you just look like a parent that doesn't know how to be a parent...  but if they ONLY KNEW.

 75. Your child greets visitors at your door with "Hello, can I smell your hair?"
76. Your child doesn't ever want dirty hands.
77. Your child covers his ears.

 78. You have to lie atop your child to get him to calm down and go to sleep.

 79. Your child barely ever sleeps.

 80. You have to pack a sensory bag to go to the store.

 81. Your child has more shirts that have been chewed through than not.

 82. You have to explain how to make a ketchup sandwich the correct way so your two year old will eat it to a babysitter twice your age. 

 83. You instinctively put away the socks inside out.

 84. You start noticing that other people's kids most likely have sensory problems, but you don't dare say anything.
 
.  You struggle to get her to get in the shower because it's too noisy, but then she will stand there in the water for an hour.

 86. At the end of the day you say "Another day down and I didn't end up in the nut house myself!"

 87. You choose your family activities by the amount of noise, light and congestion that will be present.

 88. You have to ask the birthday party attendees to whisper the birthday song to your child.

 89. You have to throw away shirts because they look like moths got to them at the collars and sleeves.

 90. All of your child's stuffed animals, shirts and blankets are chewed up.

 91. You're wiping shaving cream off the ceiling. 

 92. Your child comes over to you and takes your hand... sniffs it and then licks it.

 93. You panic when the supermarket no longer stocks something.

 94. You... yourself... leave the house with two different shoes on because you are so frazzled by the time you leave the house.

 95. As soon as music comes on you grab your kid's head to cover his ears.

 96. Your kiddo wears noise reduction headphones everywhere he goes.

 97. You turn your living room into a sensory gym.

 98. The grandparents spend $148 on a weighted blanket so your child will sleep better at night.

 99. You can't remember the last time you have eaten, used the restroom or stopped running.

 100. You pass your child an ice cube and they tell you it's hot and then blow on it.
101. Your child is five years old and still mostly only eats baby food sweet potatoes.

 102. You find yourself saying, "Don't lick the car!" repeatedly in every parking lot.

 103. You find yourself often saying "Get back to the table and play with your food."

 104. The thought of a farmer's market makes you hyperventilate because there is soooo much to touch and squeeze.

 105. Your child uses all of the toilet paper to play with instead of her toys every day.

 106. You feel crazy.

 107. Your child is spinning in circles as you read this.

 108. Your child says the same phrases and words over and over and over, everyday.

 109. When you have had to stop reading this a few times and take breaks because your child is climbing on everything.

 110. You think in terms like vestibular, proprioceptive, tactile, etc. and nobody knows what you're talking about.

 111. You kinda dread holidays because excited quickly turns into screams, tears, hitting, kicking, and shouts of "I hate you!"

 112. You spend 10 minutes every morning adjusting and readjusting his socks so they feel right in his shoes.

 113. You are very excited to get a picture of your child standing in front of Santa telling him what he wants.

 114. When your child sniffs a new roll of toilet paper and states it smells like carrots... then you take a sniff...  and can totally understand what they are saying.

 115. Your pets are hiding and you wish you had that luxury sometimes.
116. Your child is crying and screaming when you accidentally turn on the exhaust fan in the bathroom.

 117. You have quick escape plan for every event you attend.
118. You can move and think like a ninja.

 119. You buy cello tape constantly because your child wraps their ankles and legs together.

 120. You spend a fortune on socks and jeans that will never be worn.

 121. It is midday and you're still not allowed to open the curtains or turn off the lights.

 122. Your child is rubbing the legs (calves) of women because he likes the way skin feels.

 123. You learn to sit on your couch without cushions.

 124. Your child needs to wear a hat 24/7.

 125. You get excited when she lets you put a barrette on to keep her hair out of her syrup and she actually leaves it in long enough to finish breakfast.
 
126. You cannot eat in front of or near your child because just seeing you chew or hearing you crunch is cause to throw a fit and not eat.

 127. You have gone through more rocking chairs, mp3 players and headphones than anyone you know.

 128. Your purse weighs 5lbs because of the weighted lap blanket you carry everywhere.

 129. You have to check the toilet paper each time he goes to the bathroom to see if they have eaten any.

 130. Your child rolls themselves into a cocoon all the time.

 131. The same outfit or pair of shoes that your child was wearing that was fine in the morning causes tantrums and stripping in the afternoon because it is "hurting" them.

 132. You don't even notice your kid climbing all over you anymore!  It's like totally normal.

 133. Your normal is different than everyone else's normal around you. 

 134. Your child eats spicier foods than the adults. 

 135. You child doesn't like anything touching their skin. 

 136. Your child has more chew toys than the dog.

 137. You are shaking your head yes and agreeing to all of these as you are reading them.

 138. Poop on the walls doesn't faze you. 

 139. You feel every item of clothing you buy for him as you know certain textures.

 140. Your child climbs onto the laps of strangers in restaurants so that he can hug them.

 141. Ha ha ha...  you just know!

 142. You give your sixteen year old a bowl of ice to chew instead of another book.

 143. Your child gets so involved in the iPad that she has accidents.

 144. Your child doesn't like going to the movie theater. 

 145. You have to tell your child to stop washing his hands every five minutes.

 146. Discovering seamless socks is like finding gold.

 147. Your child likes to bounce off everything like a ping pong ball.

 148.  Shopping for clothes for your child is a nightmare.

 149. Your child knows 500 excuses to not go to bed. 

 150. Your child prefers to sleep on the floor instead of a bed.

151. You carry silly putty as a staple in your purse.

 152. It seems every photo of your little one has her covering her ears.

 153. Bath time means war!

 154. Your child sleeps with a heating pad. 

 155. Your child gets upset because you have to wash his clothes. 

 156. You have to make sure your child gets enough sensory input during the day.

157. You seek out Facebook groups for parents like us in order to reassure yourself that you're not alone or insane, then spend hours on that group's page attempting to understand as much as you can about your own child... from strangers.

 158. You buy the same food every week when you go shopping just so you know your child will eat something.

 159. You laugh uncontrollably at the person on the other end of the phone because they just asked if they can call back at better time when your child is settled.

 160. You can easily tune out other children's obnoxious behavior because that's your child's normal behavior.

 161. Your floor is always dirty because the vacuum cleaner is too loud.

 162. You are mentally exhausted.

 163. Your kiddo asks for something to eat at midnight
and you gladly jump out of bed playing short order cook in the hopes that she actually will eat something.

 164. A trampoline is a necessity because your couches are falling to pieces from the constant rocking and jumping.

 165. You don't care what others think if your child goes to school some days without brushing her hair.

 166. You find your son in his room with ground coffee all over the floor and he's rubbing it on himself. 

 167. You're up at 2:21 am
reading this.

 168. You can relate to this.

 169. You feel you are always explaining yourself.

 170. You are always making therapy appointments, driving to therapy appointments or looking for new therapies. 

 171. At a restaurant, your child is under the table because the food smells stinky.

 172. You are reading this and laughing because you understand it all completely. 

 173. Your child meows like a cat or barks like a dog. 

 174. People ask "What are those noises your kid is making?" and sometimes you don't even know yourself. 
You just shrug it off and move on.

 175. You can recite a movie by heart, because your child has watched it so many times & he wants to watch it again.
 
176. You never know what is going to happen next. 

 177. You don't know what type of school would fit your child. 

 178. You have to look for your child under beds and/or piles of blankets because he likes tiny spaces (perhaps the laundry hamper as well). 

 179. Your child just went out the door crying because she is so uncomfortable bundled up today.

 180. You pull a bean bag out of your purse at work.

 181. You have to give your child a slice of bread for dinner because that is all she will eat.

 182.  It's the wrong jelly Mom!

 183. You go shoe shopping to many stores, finally find a pair that feels right, bring them home and then have to return them!

 184. You allow your child to bounce on an exercise ball while watching TV and eating dinner.

 185. You bought every Aqua sand, moon dough, flubber, slime and play-doh toy... and you hope they don't eat it.

 186. When your child has eaten everything inedible.   

 187. You spend weeks, even months choosing the right toy, tool, etc. for your child... only to have her destroy it within days (if not hours)!

 188. Your child is in the bath again for the tenth time today and yet the soap is still dry.

 189. You have to explain why your child won't wear his coat in -3 degree weather.

 190. People apologize for their kids (behavior, noise, manners) and you didn't even notice! - Pshhh that was nothing.

 191. You're one of those parents who said "I'll never let my kid use electronics at the dinner table", and then you do to avoid meltdown city.

 192. You have exhausted yourself by finding 101 helpful ways to sooth your child when it is time to do oral hygiene rituals.

 193. You let your child take his shirt off in the theater because he is hot.

 194. You are giving your child a bath and washing hair sounds like you're killing someone in your home.

 195. You make multiple calls of excitement that your son let you floss a few teeth.

 196. Your child needs to be sedated for a dental check up. 

 197. You answer the same question dozens of times because your child just can't move on.

 198. Jeans to your child are the equivalent of a modern day torture device.

 199. Your child's diet contains only one color of food.

 200. You finally get one room in the house clean and by the time you get another one half done the first one is a wreck.



December 30, 2015
Quynsie, Nadia and I went and saw Daddy's home while Joe took Raven, Carson and our nephew Aiden to see Star Wars.
 
 
I thought that we had stayed home more during this break than we have any others, but my kids are showing signs of being over stimulated. Good thing we have nowhere else to go for the rest of the week.

 December 29, 2015
Ugh I hate cooking so bad! I cook most nights and when Joe is home he usually cooks (weekends) but he is busy working on the basement so I have been cooking. I have asked Quynsie 2 nights in a row of she would help out by cooking something simple... Her response I forgot how and then walks off. So I am cooking once again tonight.
 
 What Parents of Sensory Processing Disorder kids want you to know
 
1. SPD is not just parents making excuses for behavior problems in school2. Our kids are not "bad kids"3. Our kids do not "lack discipline"4. You can not "spank the behaviors out of them"5. We are not making excuses for bad behaviors
6. "One size fits all" parenting does not work with SPD7. It is real. It changes. It shifts. It morphs. Just because something was fine one moment, doesn't mean it will be fine the next8. It can be extremely challenging to live with as well as to parent a child who has it9. It cause extreme reactions, behaviors, and anxiety10. Small accomplishments in overcoming SPD issues are huge for kids and families
11. SPD does exist!12. If you see a child having a meltdown in the store, it's not because they're being a brat. It could be sensory overload13. A meltdown is not a tantrum 14. Our kids are not weird, or bad. Don't judge, & educate yourself!15. Change is scary for children with SPD
16. Children with SPD feel like they need to be in constant motion or odd positions like upside down 17. Some food they just can not eat, sometimes it's the texture sometimes it's the sight18. They won't eat eventually when they are hungry enough 19. SPD is not something they just out grow20. Be inclusive; someone's path through these woods may not be visible to you, be patient. Their path is just as beautiful and full of potential as the one you can see
21. Malicious opinions are not acceptable and simply being supportive and understanding is very appreciated22. Children with SPD are not giving us a hard time, they are having a hard time23. Sounds and smells cause our children meltdown24. It does not affect everyone the same way25. Reading about SPD is different than living with it
26. SPD is not "curable"27. Symptoms or "triggers" may change over time as the child gets older as they are exposed to new/different things & settings28. Children with SPD are not "spoiled" and they do not do it for attention29. SPD children are not "retarded!"30. You are never too young to have SPD. Please don't tell us to give our children more time. Saying "all kids go through things like this" is NOT helpful as we are doubting what we think and you are making those doubts worse
31. We are not bad parents because we cannot control our children sometimes 32. We are good parents because we try our best33. We wouldn't change them for the world, but we sometimes wish we could change the world for them34. SPD is a disability35. Please don't brag to us about how well your child does and how he/she is exceeding expectations with things. It can be hurtful. Just because they are not exceeding levels expected of them doesn't mean they are not exceeding and overcoming lots on a daily basis
36. Don't judge us parents, but support us and encourage us38. SPD is exhausting39. SPD kids do what typical kids do and they do what SPD kids do, too40. Either help us parents or get out of the way, please
41. When it looks like our children are spacing out and unable to focus, they are actually trying to process sensations and feelings42. Understand that our children are smart, beautiful, kind and caring. They are compassionate and have huge hearts43. Kids (and parents of) have feelings too44. Do not define our children from a disability 45. SPD is an independent disorder which affects various aspects of how our children function on a daily basis 
 46. We have good days and bad days 47. We parent our children based on our child's individual needs48. Girls and boys can have SPD 49. We wish SPD would be recognized so that our children could have things modified in school based on the child's needs50. We would love for people to learn facts about SPD
51. If you don't like the way a shirt feels on your body you change it. If you don't like a certain food you don't eat it. If you don't like a color, you don't paint a room with it. So don't think we are spoiling our kids who don't like those things either52. Change is not always good. Change is very difficult for children with SPD53. Please stop telling us that if we spanked our kids more often that they wouldn't act like this54. SPD doesn't have a "look" 55. Kids with SPD may only eat certain foods or wear certain clothes
56. Parents have not done anything wrong. This is just the uniqueness of our children57. SPD is a disorder that you cannot physically see. What may look like defiance is actually the child's inability to cope with his overwhelming environment58. SPD doesn't just affect the kids, but everyone around them. Adults can also have SPD59. We are the voice for our children60. Children aren't the only ones affected by SPD. Sometimes the parent AND child can both have SPD and trigger each other
61. Children with SPD may use weighted blankets for calming. They crave pressure
62. Many children with SPD have a very high IQ and are gifted
63. Until you walk a mile in OUR shoes, DO NOT JUDGE!
64. SPD can be can be debilitating
65. Children with SPD are still amazing kiddos with lots of love to give and receive